Today, May 12th, has been selected for National Fibromyalgia Awareness Day. There are several disabilities that don’t have any visible signs and a lot of sufferers tend to hide from others when the symptoms are really bad. In light of this, please take a moment to learn a little about any of the “Invisible Diseases” or take a moment to just show a sufferer that you’re there for them. Just a note to say you’re thinking of them, offer to do something that would help them (believe me the smallest thing to you can be incredibly hard for disabled people sometimes, so you don’t have to bend over backward to make their day), or even just tell them that you’re there for them if they would like to talk about what they’re going through. Illnesses can be very alienating, so every little effort means the world.
If you’d like to learn more, I’m including a few trusted links. First is the Fibromyalgia Network, which has a lot less medical jargon, so it’s an easier starting point to learn the basics about Fibro. Second is a really awesome letter to “normals” from a Fibro sufferer’s point of view, which may give you a better insight into what we may be going through and how you can help, which is also on a post at the FM Network, here. Third in line is a post explaining how Invisible Diseases can be a disability and be disabling, which is over at Invisible Disabilities. Just having someone that understands the struggles a sufferer is facing can literally stop suicide ideation even, so the few minutes you spend reading is an awesome gift.
I saved the one that I think says it best for last and wanted to put it all by itself. It explains the “Spoon Theory”, which applies to any chronic illness, and is one of the best ways to depict and explain the daily struggle of living with a chronic illness. It is absolutely amazing and eye opening. Even if you don’t do anything else, please read this brief post. I think it is a phenomenal way to raise awareness. You can read it here.
Thank you for reading this and participating in today’s event in whatever way you do. It means so much to all of us when someone tries to understand or tries to help. It means more than I could ever express that you all show support and encouragement during my journey, and I thank you wholeheartedly.
TY. I love this. You are awesome.
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